I posted this earlier but forgot to add that I had a fistula which is a huge piece of the puzzle. I was diagnosed with fistulazing Crohn’s disease at 23, 1 year ago. I had the fistula (perianal) in 2018 and got surger for it, but it never healed. My stomach issues were moderately bad but I always blamed it on other things (like something I ate). I never had a crohns flare up until august 2021 when I had iced Capps a couple of times with co workers. After this, I was diagnosed in September of 2021 and immediately put onto prendisone. I was in it for two months until December and it gave me slight moonface and bloating but no weight gain in terms of the scale. Once I got off it I was then put onto inflectra (also called remicade) for an infusion every 2 months for 2 hours in January of 2022. This is where the dramatic weight gain of 40 pounds started. It has shattered my self confidence and made me even more depressed than I already was. I have tried to eat cleaner but I don’t even know if it’s worth it and if it will help me lose the weight. To make things a million times worse, I tried to run and go to the gym and I got Rhabdomyalosis twice this year which is where your muscles breakdown too fast and the byproduct from the muscle break down (CK) builds up in your body and clogs your kidneys (almost caused kidney damage and I had two hospital stays). I’m not even 25 and I can’t even run and I’m always fatigued. If anything, my stomach issues have gotten a little better but at what cost? Does anyone have anything similar that they have been through? Will I ever be able to lose this weight? A part of me wants to go on weight lose medicine or just go off inflectra completely. It’s so odd because most people report losing weight (in a bad way) with Crohn’s disease but I’m sitting here gaining it. If you want to see images of the weight gain (in effort to help me) I can direct message you them. Please be kind, I already hate how I look so much and feel like I should just end my life because I hate how I look.
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from loseit - Lose the Fat https://www.reddit.com/r/loseit/comments/yi5etj/fistulaizing_crohns_disease/
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